First, let me take a second to introduce myself.
My name is Ina and I am the founder of INA DAYLE. I was officially diagnosed with Chronic Lyme Disease in the beginning of 2014 after pretty much a lifetime of searching for answers. When I received the call from my doctor with the results I was so incredibly relieved. At this point I didn't really know much about Lyme Disease and although my doctors warned me that this would be a long, difficult and painful road to remission.. I really didn't grasp that initially. I was just so relieved to have an answer. Was I scared? Totally. But I finally had a name to put to all the pain, I finally had a response for people who ask "but what's wrong with you? you look fine."
That relief lasted a few minutes TOPS. Because just a few minutes after the results were given to me (via phone since I had already moved home to have help from my family), my doctor said "Ok, so now my advice to you is to find an LLMD or LLND near you" -- I said, wait.. aren't you that? To which he replied, yes.. but there's nothing I can do from the other side of the country. I asked if I found someone who could administer my IVs here, if he could send the recipe. I'd sign whatever non disclosure agreement he needed. I just needed help.
I believe his response went something like "trade secret" "not patented"... you get the point. Basically he said just find someone who knows what they're doing because he can't help me from LA. The only problem is that I'm in Miami, FL.. and the doctors here seem to think Lyme just doesn't exist. I visited countless doctors, and was met with hostility, judgement and criticism... just for being sick. I've been told I'm lying, I'm just seeking attention, I should see a psychiatrist and get good meds, you name it I've heard it. At some point early on in this process I turned to Instagram. I knew this was all happening for a reason and I was determined to figure it out, so I started @mylymediary (use to be @curinglyme before I changed the name).
@mylymediary began as a way for me to share my journey with Chronic Lyme Disease while still spreading hope, positivity and love. I strive to share my story authentically and keep it as raw as possible but still shine a light on the silver lining in everything. Up until now, my page has been private, allowing me to choose who gets to follow along and read everything. It may not make sense to the average person but sharing your story with a disease as controversial as Chronic Lyme is incredibly scary. You're constantly met with judgement, hurtful "advice" and sometimes even anger. But in the midst of all that, I've been met with an abundance of encouragement, support, love and new friendships. I definitely think the fact that my account is private has something to do with this, so it will stay that way for now, but I wanted to create a platform to share snippets of my journey in more detail than an Instagram post so here we are. Here I am, opening myself up to the world in a raw, authentic way... and trying not to feel terrified in the meantime. My goal is to educate, inspire and motivate through sharing my story. If I can help just one person believe in themselves, then it's worth facing my fears.
So, to end this before it becomes a novel.. I just want to say, thank you for taking the time to read this. I know this blog post may feel different than most.. because I'm really just putting this out there with zero edits. I hope you'll join me while I take this leap into the unknown and face my fears in an attempt to make a real difference.
Have a beautiful day and remember, no matter what life throws at you, just keep swimming.
ps. if you like this, add me on Instagram to see many more in-depth posts throughout my journey, @mylymediary, and let me know what you think. What would you like to hear more of? Let me know in the comments below :)